I was actually getting to the point where I was thinking of changing the focus of my blog. I mean, what can I write about autism? What perspective do I have to discuss it when my daughter is so high-functioning that she isn't exhibiting it much any more?
Well, apparently the unbelievably good cycle is ending and a really awful one is beginning. Serves me right for getting too cocky. You'd think I would have learned my lesson about autism by now: just when everything is going great, don't expect it to last. It's pretty much the first rule, and I unfailingly always forget about it.
I always think, "This is it! She's moving off the spectrum."
When will I ever learn?
Don't be discouraged! Didn't you just tell her that she's going to change schools in the Fall? I wonder if, despite her outward excitement about and seeming acceptance of this news, she has some deep anxiety about the change in her routine, in the knowledge that what she knows so well will be disappearing. Even people who AREN'T on the spectrum can become anxious when things are shaken up a bit. I can only imagine how that might feel if you ARE on the spectrum.
ReplyDeleteSounds rough.
ReplyDeleteI know it's a bit of a cliche, but life really is like a roller coaster. Especially on the spectrum.
ReplyDeleteThis is the time of year we always have a horrid "cycle." i don't care what treatment, diet, medication we have tried with our youngest, he is cyclic and we have to ride it out. Sucks for all involved. Just remember you will get through it and you are not alone. I'm here is you need me . ((Hugs))
ReplyDeleteWe always have a tough time this time of year too. It is so hard to adjust to the ups and downs though. Just as you said, as soon as you think major progress is being made, things go downhill again. Hang in there!
ReplyDeleteWhat has changed in her behavior? Is it regular girl stuff, maybe? The fact that things have been so good, you haven't even see any signs of the big A is wonderful! Can only get better from here.
ReplyDeleteShe's going to continue to improve every year. Autism may always be a part of your lives but in diminishing ways, I'm sure!
ReplyDeleteOh, I hope this cycle won't be too bad for you guys.
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