Friday, October 22, 2010

Walking on Eggshells

This week's Asperger storyline on "Parenthood" involved the incredibly stressful situation of Max (the nine-year-old boy with Asperger's) wanting to go trick-or-treating this year. In the past, they wouldn't go because the whole experience was too much for Max to handle. He was scared of many of the costumes, couldn't handle seeing candles of any kind, and the whole holiday put him into sensory overload. His Mother was afraid of extreme anxiety and tantrums. So, instead of being really excited that Max wanted to face his fears and go trick-or-treating, his mother dreaded the event. She didn't want to deal with him having a major episode in front of the whole neighborhood. So while Kristina didn't want to face trick-or-treating, his dad, Adam, was pretty excited about trying it out.

I have to be honest, I love this show, but I'm getting pretty annoyed with the Kristina character this season. The writers are turning her into a total control freak, crazy-lady. I think they need to lighten up on her a bit. Anyway, Kristina did not want to take Max trick-or-treating. She just wanted them to do the usual--playing Monopoly in the upstairs without the lights on. I guess so that Max wouldn't have to see the trick-or-treaters. They actually consulted with an expensive psychologist to see how they should proceed. His advice? Go trick-or-treating you numskulls!

I mean, this is obvious, right? I was really losing patience with the show. They were rehearsing Max the day before Halloween by walking in the daylight, explaining what he had to do. This might make some sense to do, but it seems they should have done it at night-time instead of the daytime. Kristina was also passing out chem lights to all her neighbors, asking them to use those instead of candles. Really? Isn't that a bit overboard?

As I was screaming at the television, I had to stop myself and remember what it was like with my daughter before we starting to get help. I walked on eggshells constantly. I was always afraid of what might set off a tantrum, that I would try to avoid any situation that might bring it on. You can only imagine what the stress level of living like that is like. You are figuratively waiting for the bomb to drop. Every. Single. Second. And you know what? For every tantrum you successfully avoided, another one would pop up that you could have never anticipated--not in a million years!

My daughter has come a long way during these last couple of years. Does she still tantrum? Of course, but it's nowhere like it used to be. While I still try to anticipate what will set her off and prepare her for it (called priming), I don't allow myself to become overly stressed about it anymore. Because either she's in a mood where any little thing will set her off or she'll take things in stride. I know how to handle the storm once it hits. I don't try to avoid situations anymore. I do prime her as best I can (although trying to get a whole neighborhood to accommodate my daughter would be a bit much).

My daughter needs to learn to face the world and deal with its challenges. If I shield her from these things forever, then she won't be prepared. At the end of the "Parenthood" episode, Max really pushed his parents to stop coddling him and let him push his boundaries since he felt ready to do this. They ultimately let him face every major fear. He didn't have any meltdowns and really grew through that experience. And you know what? I think he would have grown through that experience even if he DID have a meltdown.

You can't make an omelet without breaking some eggs. Sometimes you have to stop tiptoeing around and just try making that omelet!

15 comments:

  1. I didn't see this episode yet, but I think in the previous week, you could see how stressed out Kristina was. I think that support group was the first opportunity she has had to feel like anyone could understand how she is feeling, and that she is just starting to see a light at the end of the tunnel personally.

    I'm sure she also feels that she will be judged as a mom based on whether Max has a breakdown b/c people won't see that it was a huge step forward to want to try Halloween, even if it doesn't go well.

    I think your observation that it probably takes a couple of years to get the kind of perspective we have now is true. Plus they are probably exaggerating the different emotional reactions for the show to make them more obvious to the viewers.

    Here's my question - does he go to school at all now or is he home schooled? I haven't quite figured that out.

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  2. You're good...I'm still not all the way there. I don't expect the whole neighborhood to dance to our drum just so as not to set her off, but I do still find myself trying to appease her, especially when we're in public. But we have both gotten alot better than we were, so we will get there someday...

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  3. I love the show and I think they've handled autism so much better than other shows lately, including a recent episode of Private Practice that had me throwing things at the TV. Yes, the mom was overboard, but I get it. She wants to protect Max, not just from tantrums or feeling overwhelmed, but also from embarrassing himself (or her) in front of his friends and family. And it was great that he was successful. He was ready and I think Kristina needed to learn to trust Max.

    I think it may have been more interesting if Max didn't want to do it, but the parents encouraged him to. I think a lot of times we may have to push our kids a little outside of their comfort zones to get them ready for things like birthday parties or restaurants. But like you said, they need to learn to be a part of the world.

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  4. never saw the show so i can't comment but yeah I still do fear a lot of situations because they are know triggers and I don't like dealing with it or the stares of others. I probably am a lot like kristina by the way you describe her...lol.

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  5. Great post Cheryl. I say this episode and I was there with him, hoping he would do okay. You could see the relief and pride in everyone's eyes.

    I like how you say..."you can't make an omelet withoug breaking some eggs"...great. So wonderful to hear how great your daughter is doing.

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  6. A lot of times I want to scream at Kristina, if she would stop sheltering Max so much he would probably be a lot more comfortable in social situations. I have a 9 year old son with Aspergers and as much as I hate the stares we get when he has a melt down, there are not always ways to avoid them.


    Also, I just recently started reading your blog and was wondering if you had read :House Rules" by Jodi Picoult? I would love to hear your review on that. If you haven't read it, as an Aspie mom I did not care for the way she portrayed Autism/Aspergers.

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  7. I would have been screamimg with you!
    Broken a few eggs in my time:)

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  8. I haven't read "House Rules" but I have heard about it because of the Asperger's character. What a shame that you didn't like the way the character was portrayed. I bet you're not the only one!

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  9. Well said.. i love You can't make an omelet without breaking some eggs. Im going to use it now!!!!! HUGS.. ps i still have to watch this show.. i dvrd it though....

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  10. Do you know if you it is on-line? I'd love to catch up.

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  11. Cheryl, you are so right about kids needing to "learn to face the world and deal with its challenges." Obviously this is more difficult for kids with aspergers or autism (or other challenges, like my son's hearing loss), but ultimately, all kids would benefit from learning to do so.

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  12. I watched a marathon of Parenthood a few weeks ago, and I wondered how realistic the character of Max was. It's nice to get your perspective!

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  13. This is so interesting. I agree with you completely. We can't shield our children from everything, but I do understand the concern about not wanting anything to set off her children's tantrums. I'm so glad it seems like you have it under control--or at least, you have your worry and anxiousness under control about your daughter's possible tantrums--which is probably even better!

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  14. I have a son who has CAPD (Central Auditory Processing Disorder) - it's like dyslexia to your ears - and we have spent years walking on eggshells trying not to set him off. He was diagnosed late (3rd greade). However,in many ways this is not healthy. He has never been diagnosed or test for Asperberger, but at times I hear stories like this (not the t.v. one) and wonder. He does not hear tone - but last year (being 17) we moved to a new community where he could actually have communication training (learning how to read non-verbal communication) to better able interpret what he does not hear. He declined the opportunity - because he was 17. There does come a point, where eggshell walking has to stop and their self-control has to step up. No one ever said being a parent was easy!

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  15. As a teacher, I have felt this way with some students. I liked that episode of Parenthood and its great to hear a review from someone in a similar situation. It was great when Max told his mom to back off!

    I'm happy to find your blog, its a great resource for parents and teachers.

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