I waited so long to have a baby! First, it took me forever to fall in love with the right guy and get married. Because of this, I didn't have my daughter until I was 38 years old. Considering that I had never changed a diaper before having my daughter, I had no idea what I was getting myself into! I found myself to be incredibly depressed after the birth. I did have some problems at the end of my pregnancy and had to have my baby over 4 weeks early to prevent her from being stillborn (we got incredibly lucky on that one). Because of this, my daughter had to spend two weeks in the NICU. It was so hard leaving the hospital without her! In addition to all this, my mom was having health problems and had a series of surgeries scheduled, so she wasn't able to come out to help me with the baby.
After having the baby, I found myself crying all the time. My husband encouraged my OB to prescribe me anti-depressants, which I initially didn't think were necessary. I didn't have a firm grasp on knowing how much of my depression was due to a case of the baby blues and how much of it was due to my mother's health problems. We did some research on the medication, and it didn't seem like the right thing to do. Because my daughter was born a little early, she had a hard time staying awake for feedings, which is a big reason why she had to be in the NICU. A lot of her feedings had to be delivered via a feeding tube. A side effect of the anti-depressants was drowsiness for the newborn. This was something I didn't want to increase.
I couldn't understand why I wasn't happy. It was a miracle that my daughter wasn't stillborn. Having a baby was something I wanted for so many years! Yet, I felt like the world's most inept mother. Nothing seemed to come easily! When breast-feeding finally seemed to be working, my daughter became extremely bloated and started projectile vomiting. It turned out that she was unable to digest the proteins in my breast milk, so I had to follow an elimination diet. I wasn't allowed to eat anything containing dairy, soy, nuts, peanuts, eggs, fish, and shellfish. When my daughter was about 8 weeks old, my mother passed away. I was a mess!
What helped me a lot was a phone call. A woman I hardly knew called me to make sure the baby blues weren't getting the better of me. She was a wife of a coworker of my husband, and she was a family therapist. Initially, I had assumed my husband asked her to call me since I had gotten so crazy. She assured me he didn't. She called me because the same thing had happened to her, and she wanted to help me. In fact, she was so moved by her own experiences that she pursued her Master's degree in counseling because of it. She did her thesis on older woman becoming moms. Out of her universe of over 30 women who were over 30 years of age, every single one of them felt exactly as we had: inept and the world's worse mother. Women who have excelled in the workplace and had so much independence have a harder time adjusting to motherhood. We're not use to being so out of control of our environment. Add in the lack of sleep and the hormones and look out!
After having this phone conversation, I felt the great weight of depression leaving me! All I needed to hear was that I was normal--I was not alone in feeling the way I did. I honestly was on the verge of going on medication! All I needed to hear were those simple words--"You are not alone!"
Not long after that, Brooke Shields came out with her book on postpartum depression, "Down Came the Rain." I didn't read the book, but I remember being so thankful that this topic was out in the public domain! I'm sure it helped many women understand that they weren't alone either! Maybe this helped some women to avoid medication, like me! Maybe it encouraged other women to get medication who truly needed it! I think it was great that Brooke Shields took a subject that was taboo and got people talking about it! Fantastic!
This summer, unfortunately, has seen a few cases of mothers murdering their children with autism. It has raised the ire of mothers on the parenting boards screaming for justice for the poor murdered children. I'm sure there will be justice. But to me, the real story is what drove these women to commit these horrible acts of violence. I really think there are a lot of parallels with postpartum depression. True, there are no fluctuating hormones, but there's also no end in sight for these mothers and other mothers raising children with severe autism. I used to attend a support group for mothers of children with special needs. I heard stories of how they had to change diapers and shower their 13 year-old boys. How they had to deal with their children hitting and biting them. How they had to deal with their children never being able to talk--never being able to say, "I love you." How their children had endless tantrums because the world was just too light or too noisy for them. How they had to deal with decreasing state budgets that meant less respite support. I honestly don't know how these women managed. It was heart-breaking to me.
My daughter is extremely high-functioning. We have no doubt that she'll be placed in gifted classes and will attend college someday. She's capable of having friendships with her typical peers. We even have hopes that over time, she'll be so high-functioning that she won't be considered to be on the spectrum anymore. Nevertheless, I had to deal with my own depression at times. This was mostly an issue before we had her diagnosed and had interventions like behavior therapy that helped her so much. It was hard dealing with her tantrums. She'd cry if I made a left turn while driving, but she wanted me to make a right turn. She had endless tantrums over weird, mundane things. It was really hard to cope.
What do mothers do when their children show no sign of progress? What supports are in place to help them? Apparently, more needs to be done. Oh yes, we can describe the mothers who kill as evil and horrible, but does this prevent other cases from happening? I think we need to come up with ways to help women before problems begin.
In my case, I've been impressed that every single interventionist that has been through my door has pulled me aside at some point and asked me how I'm handling the stress of the situation. They've all stated the importance of "me time." Because my daughter has done so well, I've found the stress and depression quickly went away as well. I'm lucky! Regarding the mothers who've committed murder, I can't help but wonder if anyone had taken the time to ask them how they were doing and provided them the help they needed before they murdered their children. Something tells me they didn't have any kind of support--any kind of safety net to help them out. That's terrible, and of course, the ultimate victims were their children.
This shouldn't happen in our society.
Wow. You really brought so much to light with this single post. Bravo! This belongs somewhere other than just the blogosphere.
ReplyDeleteI just want you to know that you my dear are a godsend to soo many moms and women.. just talking about these topics that were at one time unspeakable lets others know they are not alone... You are saving so many lives just doing what you are doing.. I truly believe God put you on this path to help others...hugs!!!!
ReplyDeleteExcellent, excellent post. It's amazing the difference a small life-line of support can be. I remember feeling SO alone when breastfeeding wasn't going well and we hadn't yet figured out about my son's breast milk allergy. Lonely, lonely times. I would've died without my new mom friends.
ReplyDeleteThis is a beautiful post. I did not suffer from post-partum depression, but I have struggled with depression on a semi-regular basis. Finding help and support is so important. So is talking about it.
ReplyDeleteI'm so glad you found people to support you and help you figure out what you needed to do. And thank you for talking about it and letting others know that they are not alone.
I totally agree with you regarding the mothers of autistic children. People just have no idea how hard it can be. Of course, this is not to excuse murder, but I tend to feel more empathy than the average ignoramus who posts on those boards.
ReplyDeleteWow Cheryl thank you so much for sharing your story. Recognizing and having support is essential. I felt this way with my breastfeeding troubles and felt a million times better when the LC recognized my problem and offered comfort and support. I hope more Mothers with autistic children read yours and other blogs like yours out there. I hope more people offer support and encouragement. I cannot imagine dealing with most of these things that you have brought up. You are helping a lot of Mothers out there by being so brave and sharing your amazing story :)
ReplyDeleteAnother really nice post! I've found it especially hard to deal with my son's diagnosis since my husband seems to have taken everything in stride. The support of other bloggers has really helped me through, and of course I hope to do the same for others as well. Thank you for sharing!
ReplyDeleteGreat post! I think this could easily be applied to any mom dealing with a child with special needs or health issues. My son, while not autistic, was born with a heart defect. It was a very stressful time for all of us. Thanks for speaking out!
ReplyDeleteI had JDaniel at 42. It took me a long time to be ready for the right one. He never wanted to sleep at the beginning. I remember feeling off due to lack of sleep.
ReplyDeleteGlad you sought help. Hope others will too.
i don't think i have ever had postpardum depression with any of the 6 but i was always depressed during my pregnancies for some reason since i was so tired and had many health issues. but whether i am pg or not i do feel and have always felt very inept at mother-stuff especially discipline related since nothing works for my kids like it does for other ppl.
ReplyDeleteand yes its very stressful.
Thank you, support and help is so under-rated with mothers expected to magically cope by waving a wand.
ReplyDelete(((hugs)))
This is a great post indeed. More mothers really do need help. Something as simple as time to take a real shower may make all the difference in that mother's outlook on the day and how she deals with the stress of tending to a special needs/autistic child. I would have to agree, these mothers probably did not have any real support system in place. While it does not dismiss/justify their actions, it does show that as a society, we need to provide help. It takes a village to raise a child, even more help may be needed with special needs/autistic children.
ReplyDeleteAs a stay-at-home mother of two autistic children 8 (high-functioning), 3( non-verbal) and an elderly mother-in-law that lives with us, it's mostly me and rarely do I get back up for any of them. So I can sympathize and totally understand the stress!
It is so sad that these moms are harming their children. I cannot imagine how they get to the point of harming their children, but I can imagine how they become so isolated and so hopeless. There needs to be more done for the mothers like me, who don't have friends. I have no one to call up and go out with. I'm home all day with my children. My son goes to preschool for 3 hours and that's the highlight of my day. It's a break from the random screaming. But on days like today, when there is no preschool, I have no breaks. I really thought I was going to have a nervous break down and just turn the tv on for the kids and go cry in a corner somewhere. There are times when they will both start screaming. One is upset, and the other is screaming because the first is screaming. There is a support group offered at the preschool for parents of ASD children, and I will go to it on Sept 2. Until then, I just cope and try to understand that my 3 year old son is the same developmentally as my 10 month old daughter. He can't talk, so of course he will scream. It's so hard, and the only other people who really understand are the mothers and fathers of ASD children... there needs to be a better support system set up, so we can support each other.
ReplyDeleteYou are so right. I had PPD and didn't know it until over a year later. I honestly thought I was nuts and just needed to power through. And then while I was on bedrest pregnant with the twins I read a story that could have been me. The things she described were so similar I could not believe it. I felt so relieved it was amazing. Like you said just to know it wasn't just you and you are not alone is sometimes all the medicine you need.
ReplyDeletethere's a tv show in oz called insight and basically there's a host and the audience is made up of people who have something of value to add to the 'conversation'.
ReplyDeletei'll never forget the show i watched on austism because i still can't believe i ended up feeling empathy for the woman who had killed her son (she'd also tried to kill herself, obviously failed, and spent time in jail).
can't imagine how i would deal. sounds like you're quite a role model.
This is something that isn't discussed nearly often enough....and something too many people are to quick to dismiss.
ReplyDeleteThanks for bringing it to light.
I didn't/don't have depression, but what I have had to work with, is anxiety disorder. I already had a mild case of it, then my ex-mother-in-law was feeling vindictive and filed false charges against me w/CPS. Then she got her friend to also file false charges. 2 sets of charges requires an automatic investigation, so my child was removed from me a month before her 1st birthday. I finally have her back, fully & legally. She's 5 now. Needless to say, my anxiety levels didn't really go down over the years. Thank you for bringing light to this issue! Moms think they have to be PERFECT. It's not gonna happen.
ReplyDeleteWow, I wish more people could read this post. You've really made some important points here.
ReplyDeleteThanks for enlightening me and others.
=)
This is a much needed read...my niece is and has been where your are..her first child is autistic and she went into a deep depression...then with the economy they lost their house and life seemed not worth the living..with a lot of love and prayer she has been blessed with another child and coping skills for her life..she is now a strength to ohers - like yourself...blessings....bkm
ReplyDeleteThank you for writing this post. I can relate and I'm sure alot of other moms out there can also.
ReplyDeleteOne of my children has received special education services (for deafness) from the county. I found that location mattered greatly. We lived in a proactive county when he was diagnosed, and the social workers were immensely helpful and supportive. Two years later, we moved to a different county, where we had to fight for any services.
ReplyDeleteMy point is, I wish that all families were offered the same level of support. Most likely, if those women who killed their autistic children, had had more support, they would not have felt so desolate.
Bless you for your bravery.
ReplyDeleteI really related to what you wrote here. So many people keep "secrets" when they could be asking for and receiving the help and information necessary.
We all feel like we are the "only ones" and we spend so much time acting like our lives are perfect that I think we paint ourselves into a corner with pride sometimes.
I really applaud for this post. If it helps even one person it will be well worth your pain in sharing it.
Hormone imbalance can, indeed, be a deadly thing. I'm glad you got that call. Angels work in mysterious ways sometimes.
Hugs and A+!
How wonderful that we have blogs to read other women's stories to draw strength and courage from.
ReplyDeleteI commend your courage.
Thanks for sharing your experiences, I'm sure a lot of people will take comfort in knowing that they hav the same experiences as you.
ReplyDelete