Friday, April 30, 2010

When Itchiness Can Spell Trouble

I came very close to losing my daughter when I was pregnant with her. During my pregnancy, I developed a condition called Intrahepatic Cholestasis of Pregnancy (ICP). Generally, the main symptom of ICP is itchiness--extreme itchiness. The effects of ICP can be devastating, however. ICP can cause premature delivery. Even scarier is that it can cause a baby to be stillborn. Doctors who know about it and who really appreciate the dangers of it, recommend delivering the baby at 36 weeks, because the risk of stillborn increases dramatically after that.

In my case, I wasn't that itchy! I did develop nausea at around 28 weeks, which concerned my OB. I did have one itchy attack on my belly that lasted about 2 days. I almost forgot to even mention it to my OB because the itchy attack had already passed, but thankfully, I did remember to tell him. He immediately sent me off for a blood test to see if I had ICP. Unfortunately, I did, so I had to get monitored by both my OB and a high-risk doctor.

I reassured myself that I was fine because I wasn't that itchy! And I was thankful that I had amazing doctors who took this condition seriously. They put me on the recommended medication and scheduled an early delivery for me.

I was surprised when the high-risk doctor called me at home on a Saturday morning. He told me to pack my bags and get to the hospital ASAP! They were going to deliver my daughter that day. My girl wasn't scheduled to be delivered for another couple of days, so this surprised me. I asked him if everything was okay. He told me that he had another patient with ICP. She was at the hospital the previous night to get a steroid injection to help mature the baby's lungs. Afterward, they monitor the baby for 45 minutes before releasing the mom. I had already been in for my steroids shots, so I know how that goes! Anyway, while the baby was being monitored, the baby went from doing great to dying. The high-risk doctor said it happened really fast, and they couldn't save the baby, even though they were at the hospital! The mom was also only 33 weeks along--not at the risky point yet. It freaked out the high-risk doctor, and he wanted to get my daughter out ASAP before the same thing happened to her.

At the time, I thought everything was fine with my baby, and he was just being neurotic! However, at the hospital, we found out that my amniotic fluids had gotten dangerously low and that my placenta was appearing to be prematurely aged. So, I had a c-section delivery. My OB said that things had really gotten bad in my uterus, and my daughter wouldn't have survived another two days in there. We couldn't believe how lucky we were. We felt that another baby had to die in order for our baby to live.

It's strange, but because of this, I always felt my daughter was destined for greatness--that there was a reason why the stars would align so perfectly for us! I'm not sure this is a rational thought, but it's one I still hold today, six years later!

If you are pregnant and having severe itchiness, I highly recommend you see your doctor ASAP and have them run the blood test for ICP. For more information about ICP, please visit www.itchymoms.com . This website is a fabulous resource and has very complete information about ICP.

15 comments:

  1. How scary! I've never even heard of this. I'm so glad it all worked out. Thanks for sharing.

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  2. since I had a stillbirth in 2000 I think I have overeducated myself on all the things that could go wrong and have heard about this one too. whenever someone pg says they are itchy I have flipped out and urged them to see a doctor but no one I know ever takes things like this seriously.

    life is more fragile than we think.

    I am kinda mad my doctors have made me wait so long as it is to deliver. All the other babies were born in CA and they were out by day 1 of 38 weeks...here I am at 38 weeks day 7 and I am very stressed. I personally think they are wrong in making me wait an extra week.

    anyway, tomorrow I deliever.

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  3. I'm glad, Kim! There can be problems when they deliver early--even as "late" as 37 weeks. But I think when there's a risk of a stillborn, the risks of waiting outweigh the risks of delivering early. I was very blessed to have TWO docs that took ICP very seriously!

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  4. I usually don't weigh in, but this one has me crying at the office. Thanks a lot!!

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  5. How scary. I thought that itchiness was normal as the skin stretched. Shows you what I know! I'm glad your baby girl was born as healthy as can be!

    Thanks for stopping by my blog - I didn't see that editorial in the LA Times. Do you have a link, and if so, could you email it to me? My address is on my blog (don't want to type it here, in case bots are loitering..)

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  6. I had a VERY itchy rash develop when I was about 34 weeks pregnant with my son. It was horrible! No one ever tested me for anything! I never went into labor with my son, so I was scheduled for induction at 41.5 weeks. Before I was even in labor, before they had even given me an IV, they lost his heart rate for no reason. I had a csec with him. He was not in great condition when he was born. The doctors had no idea what happened to him. After a few hours observation, he was ok. I can't help but think it had something to do with that rash I had...

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  7. I've never heard of this! Thanks for telling us. I'm so glad that everything is ok and that the doctor got you in there. I'm also so sorry for the family that lost their baby. I guess in a way, that baby saved your daughters life.

    Thanks for being a wonderful part of my SITS day, it means the world to me!

    Lots of yummy love,
    Alex aka Ma, What's For Dinner?
    www.mawhats4dinner.com

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  8. Oh my goodness what a scary situation. I can't believe how fortunate you are. Do they know what causes this--are you at risk for other pregnancies? This is certainly an important post--these are the rare kinds of diseases you never hear about and therefore are at a much greater risk if you get it. We all know about being preeclompsic-but this is just unknown. Stumbled here from SITS--the itchiness title caught my eye. dianeswords.wordpress.com

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  9. To address some of the comments: that CATlady: an itchy rash is probably PUPPPs. From what I understand, this causes terrible itchiness also, but is completely harmless to both the mom and the fetus. ICP doesn't present a rash.

    dianeswords: no one know what causes ICP, although there may be a genetic component (although no one that I know in my family has this). There is an extremely high chance that it would return with repeat pregnancies--a big reason why I stopped at one child!

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  10. WOW, what an amazing story. I had a bad rash while pregnant with my second child and everyone discounted it and thankfully everything was great. But, great to know and be aware of. WOW!!! What diligent docs you had- that is amazing! Thanks for stopping in and I am glad I popped over to say hi back! (My SIL is expecting, as you can tell, so I'll too keep it in mind for her-).

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  11. Wow, this is one of those risks that they never tell you about... at least I never knew that itchiness could be a symptom of something so serious! Hopefully I'll remember during my next pregnancy!

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  12. I had two high risk pregnancies too.. I think in a way it prepares you for the challenges of raising a special needs child. Teaching you that medicine is a science, and not exact. Gut instinct is good

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  13. I am so glad things worked out. I have never heard of this before. Stopping from SITS!

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  14. Thank you sooo much for the info.. im passing it onto my sister.. shes due in august

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  15. WOW! thanks for the info! I had never heard of this before...

    stopping by from SITS!

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